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Saturday, August 8th, 2009

Alzheimer’s Disease is Brain Disorder

Alzheimer’s Disease Begins Long Before the Mind Fails – What are the Early Warning Signs?

Alzheimer’s disease is brain disorder and the most common form of dementia that occurs in those aged over 65 (symptoms appearing earlier is called Younger-onset Alzheimer’s). Named after the German psychiatrist Alois Alzheimer who first diagnosed it in 1906, it is an incurable and terminal disease that progressively worsens over time.

Alzheimer’s destroys the brain cells leading to memory loss where sufferers are unable to remember recently learned facts, problems with thinking straight and behavioural difficulties that affects work, hobbies or social life. Problems with planning ahead, difficulty paying attention and apathy are also common symptoms. Alzheimer’s affects people differently; some will have more problems with basic motor functions (like writing with a pen) than with memory whilst others will have more trouble with speaking. The degenerative nature of the illness means that symptoms grow worse and sufferers will become increasingly dependant on others to do basic things.

Early warning signs include forgetting important dates or events and asking for the same information over and over again, difficulty completing familiar tasks like driving to a well-known destination, confusion about where one is, having trouble maintaining a conversation, losing things, withdrawal from social activities and changes in mood where sufferers become uncharacteristically anxious or fearful.

In the advanced stages of the dementia, the sufferer’s communication skills would have been reduced to short phrases or single words, eventually leading to a loss of speech, they will be completely dependant on others for help with feeding and bodily functions, and some will become increasingly violent or else completely bed-ridden. Sufferers don’t die from the disease itself but from factors caused by the disease like pneumonia or ulcers as a result of lying in the same position for too long.

Most instances of the illness are random and not inherited or linked to genetics in an easily identifiable way. Only 7% of the illness is classed as hereditary.

Treatments depend on the diagnosis, and doctors divide symptoms into either ‘cognitive’ or ‘behavioural and psychiatric’ categories. For cognitive symptoms, drugs like Donepezil and Rivastigmine are used to help with memory and communication, and Memantine helps to temporarily delay the worsening of symptoms. Non-medicated treatments of Behavioural problems- which include hallucinations and restlessness- include ensuring the sufferer is in a calm and comfortable environment and not arguing with them if they get things wrong. People with dementia are more likely to suffer from fatal side effects of drugs, so starting with just one medication is recommended, and one that is targeted at a specific symptom e.g. antidepressants to help with insomnia.

48 Responses to “Alzheimer’s Disease is Brain Disorder”

denise Says:

WHEN MY AUNT WAS DIAGNOSED IT WAS EARLY ON, SHE WAS FORGETTING PLACES SHE ALWAYS DROVE TO, CONSTANTLY MISPLACING OR LOSING THINGS. SHE AND I WERE SO CLOSE ALL OF OUR LIVES, SHE ALWAYS COUNTED ON ME AND I ON HER. A SHORT TIME INTO HER DISEASE SHE STARTED TO DISLIKE ME, THE DOCTORS TOLD ME THAT IT WAS NOT UNUSUAL FOR A PATIENT TO TURN ON THE ONES SHE LOVED THE MOST. I WAS SICK ABOUT HOW EVERYTHING ABOUT HER CHANGED. SHE DID NOT DESERVE TO LIVE THIS LIVING HELL.

pauline Says:

Denise ( August 9th), I have experienced this horrible disease in my own family. It is more than sad. It can really turn your life, and your familes life, upside down.

Please understand Denise, that your Aunt will always love you, it is her disease that dis-likes you.

The best you can do is make her as comfortable as poosible and not take her bad behavior toward you to heart.

Kahty Says:

My Mom-in-law’s Alzheimers first started with forgetting how to complete sentences, forgetting the names of common things. She would think of something to say or ask and by the time she started to say it she had already forgotten. Early on she just kept saying “I wish I had a better memory” Things got at their worst when she could no longer get her legs and feet to work, she tried but I guess her brain receptors that tell your feet and legs to move were no receiving her commands. At that point we had no option except to put her into a nursing home. We saw her often but one day my son (her one and only grandson who the sun rose and set on) came with us to visit and she did not know who he was. Sometimes she had trouble with recognizing me but then she would say my name. She always recognized my husband, her only son. It’s a terrible disease that robs people of the things we say they can never take from us -our memories. It takes them and destroys loved ones. To Denise, I’m so sorry that she began to dislike you after you had been so close. It’s just something they can’t help and don’t even realize that it’s happening. You are so right it is a living hell and NO one deserves that. I hope with all my heart that with all our technology of today we can find if not a cure at least something to slow it down or make it not so horrible for everyone involved.

Jo Says:

My mom also turned on me (her only child), and other close family members and caregivers. Her personality completely changed. It was VERY difficult for all of us. Although I knew she could not help the person she had become, it totally broke my heart!

David Shoemaker Says:

Hello, I am sorry to hear about your aunt whom you have been so close to, and I hope thing change to regain that closeness.
I have wondered about myself as to whether or not I am into an early onset of this too. I forget a lot virtually every day. Twice in the last few weeks I went to the grocery store in the evening and after unloading them and taking them into the house, I forgot to go back and shut the tailgate of my SVU and it remained wide open all night. Luckily it wasnt stolen. I was embarrassed the next morning to go outside and see it wide open.
I have got better about remembering where my coffe cup is after I heat up the coffee in my microwave. For a few weeks, I would look in every roon for my coffee and then
finally find it in the microwave.
Those are only 2 examples out of things that happen to me virtually every day. I am only 56, nearly deaf in both ears. Any comments please

daughter of this illness Says:

My dad recently passed away at the age of 57 . He also was diagosed last july . It was really sad my kidz and my family saw him fall apart in front of are eyes . He always new who my kidz were but he got really mean with mom & brothers .It was so sad and in such a short he was gone .My family deserved to have my dad around longer we were robbed of him by this disease.

Lee Says:

David Reading you story I couldn’t help but smile. I think one in three can read your story and say” Hey that’s me” I’d forget my head if it wasn’t attached. In this day and age so many of us are riding in the fast lane. With all that we need to remember to do it is no wonder that we forget some of the simple things in life. My mother developed alzheimers but she had one leg that was weak and when she got older she started falling a lot and often hit her head. I was told this is what started her symptoms. But because, like you, I would forget the simplest things I started to get scared thinking I too was in early stages alzheimers. I joke about it when it happens just to make light when I am with others but interestingly they all laugh and start telling me their stories. So not sure how we are to differentiate a very busy life style from true alzheimers. In any case David if it is true that we are in the transition I would venture to say that we are not alone and with so many babyboomers coming of golden age they will either work harder for a cure or build nice comfortable facilities for us. Take care David and good luck to you. As for those who are watching their relatives suffer. God bless you for caring enough to take care of them through thick and thin. Because they do love you and know not what they do!!

Jean Says:

David, I think that what is happening with you sounds so much like the very common, modern-day, functional ADD – attention deficit disorder. Our attentions are so divided, we forget (and I’m so prone to this – and am your age) how to focus our attention on one thing at a time. Multi-tasking is a myth – we can’t think about two things at a time. We can only really focus our attention on one thing and when we attempt to multi-task or future-focus while doing something simple even (unloading groceries or heating coffee in the microwave) we divide our attention and something must drop out of our short-term memory. I’ve got Alzheimers in my family and am working to try to build my ability to concentrate and focus on one thing, one moment at a time. I also practice memorizing passages and poems, do word puzzles and mental exercises. All of these things can help, though can be frustrating at times – they do take longer than when I was younger. I wish you the best – if you get more concerned, do see about an evaluation, if just to ease your mind. But you sound so “normal” – I’ve done both of the things you described and many other things. I’ve read that you typically DON’T recognize what’s wrong if it’s truly Alzheimers, so the fact you notice these things probably means you’re fine. I certainly wish you the best.

Kay McGarvey Says:

My husband of 50 years was diagnosed one year ago and even though we still have days that are truly wonderful, they are getting fewer and farther in between. He sits in his chair with a blank look on his face much of the time and sleeps 12 hours every night. The future I really try not to dwell on and just live one day at a time with God’s help. Is the sleep a common thing. He is very sweet to me and tells me every day that he loves me and doesn’t know what he would do without me.

Shannon Says:

If you or a loved one takes LIPITOR…Please read this!

My grandmother had this horrible disease called Alzheimer’s in 1988 & I watched her go from a busy Christian housewife to a lady who couldn’t do for herself, communicate and knew none of her close family. But, we continued to go see her daily at the nursing home, talk to her as if she knew what was going on.(& sometimes, it was as if she did, she just couldn’t tell us)But, after watching her & others at the nursing home with the disease, I began to know what the signs of this disease was.

Now, on to 2009, my father started having memory loss, face and name recall, especially, he had forgot good friends & family if he hadn’t seen them in the last month. It didn’t seem like he had Alzheimer’s like I had seen before. I had the arteries in his legs & neck checked to see if there was possible blockage causing blocked blood flow to the brain. His carotid arteries were 50% blocked, but they have to be at least 60 to 70% to do surgery on them. So the Neurologist upped his LIPITOR from 20mg to 40mg to try to block more cholesterol in his carotid arteries.

I was so upset one day because my dad couldn’t recognize any one on his email list when I asked him!!! So, I typed “Face Name Recall Memory Loss” on the search of my computer ~ thousands of LIPITOR related stories came up!!! I about panicked…my dad had memory trouble before but now the Dr. DOUBLED his LIPITOR & I had noticed it being worse in those 2 weeks!!!(Not to mention, I had been on LIPITOR for years, plus my mother was on it,too!!) I put 2 & 2 together and called my dad’s heart Drs immediately!! One Dr. called my back HIMSELF within 3 minutes! He said get him off the LIPITOR!! The other Drs nurse called 20 minutes later and said for dad NOT to take LIPITOR!

My dad has been off LIPITOR for 1 week & I can’t begin to tell you how much he is able to do and remember within this one week!! He still has problems w/names but he remembers that there are cousins & what town they live in, which he was unable to do last week. He was always a very studious man and lately he would only read the local newspaper but, 2 days after being off LIPITOR he was reading the CO-OP Magazine and 5 days later I took him on a 6 hour drive to his cousin’s funeral and he was READING THE MAP!!! He told me what highway was coming up and what road & town I would be coming upon next!!! My mom in the backseat kept saying “I can’t believe he’s reading that map!” So please CHECK to see if your loved ones are on LIPITOR or any other STATIN to control cholesterol levels, even if they have been on them for years.(my dad had been taking them for over 10 years) I found out that 17 million people are on LIPITOR & 360,000 have said they have had Alzheimer and/or Amnesia like symptoms. PFIZER that makes LIPITOR says that, this is ONLY 1 in 50 people this has happened to & that’s not enough to say that LIPITOR causes these problems. I say, “THAT’S CRAZY, especially if it your loved one in that 360,000 people suffering from MEMORY LOSS!!” Don’t take my word for it! Look it up on the internet!! You may safe a life! There are no telling how many people are living w/Alzheimer-like symptoms and/or in the nursing home because of LIPITOR!!

Madeleine Says:

Dear Mrs. McGarvey,

Your last sentence brought tears to my eyes; how sweet! I’m an “old maid” of 45 and how lucky you are to hear this from your husband every day.

Is he on any medication for Alzheimers? The fact that he just stares all day makes me wonder if he is being overmedicated. Sleeping so much could be another symptom of overmedication. Check with his doctor about the dosage; the doctor might even want to try another medication. There are so many more medications on the market now than there were just a few years ago.

I know you miss having more communication with your husband, but if his meds check out ok, please count your blessings that he sleeps 12 hours a day. So many Alzheimer’s patients sleep only a few hours and want to wander for the rest of the night. Or they can spend hours repeating the same questions or phrase. When he is sleeping, he is probably having wonderful dreams recounting the good times he has shared with you, and his long slumbers give you — his caretaker — a break.

My mom has had Alzheimers for six years; she is in an assisting living facility. She stopped recognizing me as her daughter about two years ago, althogh she enjoys having visits from the “pretty lady” and there is some recognition there after a few minutes. She does not respond to “Mom” but only to her first or last name. I still call her Mom, though. She and I used to be so close, and I miss her SO much.

This is a tough road we travel. God bless you for taking such good care of your husband. That is what the “in sickness and in health” part of the wedding vow means, yet so few couples these days honor their spouses with lifelong devotion regardless of how tough it is. I hope you have more good days with him than bad. Either way, count your blessings and know that you have earned your angel wings.

Much love, Madeleine (Miami, USA)

Cathy Says:

I am a caregiver for my parents. My mom has moderate/advanced stage alzheimers. They can sleep along time. My mom will sleep for 12 hours if I let her. I wake her up so that she will go to bed at night. She knows my name and that I am a safe person but doesn’t know that I am her daughter. They become child like. You need to treat them like children sometimes and remember that it is the alzheimers and not them. Try not to take things personally which sometimes is difficult. Try getting involved in a support group. It really helps and you can get ideas about what to do about certain behaviors.

Diane Dellicarpini Says:

To Kay,
My mom had alzheimers and she slept a lot, day and night.

Tom Says:

I was reading some of the comments from people concerned about forgetting things like leaving the SUV trunk door open…location of the coffee cup in the house…stuff like that. That’s not Alzheimer’s, that’s just normal forgetfulness. Or, it is when it happens to people under 65. When it happens to those of us over 65, those who are under 65 and who also forget things make unthinking/unkind comment and can cause the 65+ to worry unnecessarily. An Alzheimer’s specialist once told me, “if you’ve forgotten where you left your car keys, that’s not Alzheimer’s. If you’ve forgotten what your car keys are for…that’s Alzheimer’s”.

Lani Says:

My 79 year old father was diagnosed with this terrible disease 4 years ago.I took care of him for the past year.the last 6 months he lived with me was a nightmare as I watched the disease progress rapidly almost overnight.He began forgetting what day it was and I was afraid for him to drive.He got lost several times not far from home and we would have to go and search for him.He would sleep all night and most of the day.He became very uncooperative and would tell my siblings horrible lies about me and my husband.He also would get on the internet and cell phone trying to find a woman he met over 60 years ago.He would call complete strangers and reveal personal information about himself.When I would try to discuss this with him,he would become so angry with me.He began to neglect his personal hygiene daily.He would not bathe,brush his teeth or change his clothing.Then he became very ill and we found out he has terminal cancer.He is now in a nursing home to live what time he has left.Alzhiemer’s took the man and the father I knew.It is horrible.

Marianne Moore Says:

I’m a retired nurse, and have cared for many Alzheimers patients over the years. Usually, when I saw them, they were in the advanced stages of this very sad disease. My biggest concern was for the family members, who had to finally give up and place their loved ones in nursing homes. They have a very bad sense of guilt that they can’t take care of the patient at home anymore, but it almost always becomes necessary. Many Alzheimers patients need round-the-clock care or special nurses to be able to stay at home, as they become very restless and violent at times. If their caretaker is their spouse, he/she is probably at an age that can’t cope with this behavior. One of the biggest problems is that they often don’t sleep at night, which keeps the whole house awake. They “escape” in any weather and wander away, sometimes naked or in inappropriate clothing. They will walk into traffic, or enter other people’s homes. They become incontinent (won’t try to control their bowels or bladder). Some become very noisy. I always tried to reassure family members who were upset at having to place their loved ones in nursing facilities, that I’m sure they did their best, for as long as possible, and that they should not fell that they had failed the patient. Nursing homes offer 24 hour care, often in special units, and can give these patients better care than their families could provide in the late stages of this disease. The family members finally get to sleep at night again, and can return to a normal routine. God bless them for trying for so long.

Shirley Says:

As a nurse, I have worked with Alzhiemers patients a lot. I often feel like David about my own mental health. But…I do agree with Lee and Jean. We are all forgetful. We all do things daily that might make us candidates for this horrible disease, but…we also are older, only human and are entirely too busy these days! As for multitasking…nurses are expected to be excellent multitaskers. I can and do more than one thing at a time working with people on dialysis. But…I forget things too. We are only human. Not machines. I rely on God daily and need His strength to get me through. All of us baby boomers are getting older and I think like Lee that there will be much work for others building us oldsters some comfortable places to live! LOL. So…just realize we are ALL becoming forgetful. Not all becoming Alzhimers! God bless you all!

Shirley Says:

Oh,see, I forgot already…I meant to say that working with patients in the past with Alzhiemers, I found that they usually turn from the lovely person they were to very mean people. And from very mean people to lovely people. Strange as it may seem. The personality reverses. I have even taken care of ministers who had it and their families appologized for “Dad never used those words in all of our lives”. Dad had started cursing. These are strange, hard and heartbreaking for loved ones. But…thank God that healthcare workers understand and teach families about what to expect. At least most of us do. Take care and God bless!

concerned daughter Says:

I am the primary caregiver for my mother who not only has Alzheimer’s… she has a colostomy and now also a diaper due to incontinence…
IT IS A DAILY NIGHTMARE… she can run the range of being nice (rare) to being very resentful (the norm) and fights me on hygiene issues.
She has repeatedly said that she’d rather be dead and I think it’s terrible that we can euthanize our beloved pets but we are not allowed to make choices for our own selves or our loved ones. This is also a very costly disease and is going to bankrupt the family to pay for her care. I’ve kept her in my home for the past 3 years and have not been able to work as a result. We NEVER planned on my not working and with the economic situation the way it is now, we are scared to death that we will lose our home.
She was in the hospital and then two nursing homes for 10 days recently and the care was HORRIBLE. I wrote her name in her diaper each time I changed it and was able to prove that NO ONE EVER CHANGED IT other than myself. They also didn’t deal with her colostomy!! I’m working hard on getting two bedsores healed that happened on their watch, as well.
Want to know why medicare is going broke? The nursing homes and hospital charged for things they never did!!! For example, the first nursing home; she was in only 2 days before I found another place… they submitted for 21 hours of “physical therapy”… TWO hours, maybe… and she lost 21 pounds in 10 days in THEIR care. Was put on all kinds of doping meds so she’d sleep so they wouldn’t have to deal with her.
Meanwhile, my mother-in-law dropped dead, unexpectedly and it turned out to be a blessing. Terrible that she died… but oh, my goodness… the comparison of what we’ve gone through….
you find out who your friends are, too… family, too…
If I even suspect this is MY future? I will make certain to end my life on MY TERMS…. and not put my family through this daily nightmare.
I love my mother. I provide better care for her than any nurse, doctor, etc… But, honest to GOD… she’d rather be with God and her beloved husband than here on earth in her situation (and she is still able to have lucid moments of full awareness that breaks her heart, my heart… ).
She should be allowed to die with some dignity. I think the nursing homes keep them alive just to get the check.

concerned daughter Says:

I forgot to mention that my mother will be 82 next month… and her dermatologist can’t wait to do more surgeries on her… for WHAT??? so she can make MONEY!! She wants to remove my mother’s lip, deforming her, because of a skin cancer… give me a break… I want to slap this doctor for her absolutely clueless attitude.

Kathy Slaughter Says:

I was told that misplacing keys is normal, but not knowing what keys are for is Alzheimer’s.

Susan Shanahan Says:

Kay,

My Mother has had alzheimers for more than ten years now. My Father is her care taker. We are so lucky that her mood is pleasant (most of the time) and her disposition is sweet. She dos however sleep for very long periods of time. Cannot get her in bed till 1-2am and then she sleeps until 3-4-5 pm most days. It is a lonely road for the spouse. Enjoy every wonderful day you have with him…they are very few now and my parents rarely leave the house. We have a nurse, a dog walker and I am there most weekends to help. Stimuli helps her moods….pictures, music, talking with her family. If she just sits and stares into space…she seems to be much worse. God bless all of you who are dealing with this insidious disease. It is a heart breaker.

Stephen Says:

I’m a nurse who works with Alzheirmers patients and their families on a daily basis. I pray my partner (65yo) never develops this disease, because I see the families and the patients devolve into a nightmare of hell when their family member develops Alzheimers. My prayers are daily with those afflicted with this horrible disease….

Maribel Says:

I must say that I know how you feel because I take care of my dad who was diagnosed with Alzeheimer’s in 2003. I come from a big family and I have no help from my siblings. It is sad to see him deteriorate the way he is doing and it hurts to see him like that. I too sometime think that I have early stage of Alzeheimer’s cause I find my mind wandering and shutting down. I have so many names that I actually forget my real name because I answer him when he is calling someone else’s name who is now deceased and believe me it really hurts me. I work full time, go to school fulltime and take care of my family fulltime and i gave up everything tmy social life to care for my dad. He gave me life, he was always there for me and my children and like everone else he is afraid to walk now and he recently fell and hurt his back and refuses to get out of bed. I bathe him everyday cause he defecates on himself and not even the diapers helps. I suggest that everyone stays strong and keep their love ones next to them. I refuse to put my dad in a nursing home cause the care he gets at home would not be the same; I’m afraid if I place him in a nursing home he will die from suffering. Its bad enough he doesn’t know who I am and that I am his daughter and leaving him there will literally kill me. So, don’t get upset with your love one and just understand that they became a child again and they are our child now. May God Bless each and everyone who is taking care of their love ones with Alzeheimer’s cause GOD is looking at what we are doing and we will be bless for caring and loving our love ones.

Sal Says:

David & others — They say forgetting your car keys (for example) is no big deal. Forgetting what the car keys are used for is what’s bad. Best of luck & God bless to all.

Pat Shea Says:

I have not been diagnosed and still function normally. I’m 58 now and experience what I believe(hope!)is the normal memory loss that comes with aging, but I can’t help thinking (fearing)I may be in the initial stages of dementia / Altzheimer’s. It’s certainly scary when I can’t seem to pull the word out of my head and I’m trying to hold a conversation. There is nothing – nothing! – I fear more than Altzheimer’s, and that includes cancer. Two wonderful aunts (sisters)died within a year of each other from diseases secondary to Altzheimer’s; I can’t help but think hereditary has more to do with this than we think. My husband and I have no children and my neverending fear is that he will end up having to care for me as I descend into a deep dark hole. Maria Schriver’s program on HBO was heartbreaking, especially when you saw how young children were impacted by their grandparent’s disease. God’s blessing on all who have to deal with this horrible disease.

cj Says:

My Dad passed away at age of 59, not from Alzheimer’s but from the problems inflicted from meds. I am an RN and my dad was placed on Hospice, which used Ativan to control his outburst. The Ativan made symptoms worse, then the dose was increased after much dismay to the nursing staff, we obliged, this only made him more combative. Over several days and horrific events, even having him inpatient committed for psychiatric geriatric treatment by a specialty psychiatrist for Alzheimer’s patients, my dad died from Malignant Neuroleptic Syndrome, where the brain goes out of control from medications, essentially an overuse of meds and the part of the brain which controls temp, hr, rr, function gets burned up. He died exactly 8 days after he was placed on Hospice care, but from medication overdose. So, to all those in the world with this dreadful disease, be careful of drugs used with these patients. His life ended far sooner than it should have. Sept 14th at 3pm will be 1 year since his death. My dad did not sleep alot he walked the floor most days because he was paranoid of what was happening to him and constantly wanted to work. The blank stares right thru you are normal, but be careful of men visiting in the later phases, my fatherfelt threatned by other men. My thoughts and prayers are with you during this time, take one day at a time and use support groups also.

Deborah Says:

I am sorry about your family member. My mother was diagnoised with Dementia at 59. She is now 74. Sometimes seeing her the way she is is the worst thing that I ever dealt with. I am a nurse and sometimes I just want to walk alway. Sometimes I ask myself is the disease bothering me more than my mom.See has always been a strong women. But, to see her in a nursing home
is sometimes more then I can bear. My mom raised 3 kids by herself with no finanical assistance. My brother does not help and my sister is deaceased. Sometimes I feel so all along. But, I ask God everyday to help me one day at a time. I don’t know what this disease is but, I hope someone finds a cure one day.

Linda Gribbins Says:

We have just been told my father-in-law has the start of dementia. Is that the same as Alzheimer’s? I feel for all those that have written. “Pops” has always been difficult but now it seems he is more difficult than ever. He can remember stories from 40 years ago but cannot remember to be ready for an appointment even when we call to remind him. It is so difficult to have a conversation with him because it has to be done his way…he is still cooking and living on his own but has moved to a senior living facility. I hope he can find some happiness there.

Tricia Says:

My mother and my aunt both have alzheimers disease. My mother is 95 and my aunt is 92. My mother only started showing signs several years ago. Her brain has shrunk in size. She has also had a couple of small strokes. She was sharp as a tack and could remember any important phone numbers or names of people. She doesn’t talk very much anymore she struggles to complete a sentence. But, I still enjoy being with her. I just hug on her and kiss her and tell her how wonderful she is. Time is precious.
Oh and has anyone read about the spice, curry. A study was done that showed there were fewer cases of alzheimers disease in India and they are contributing this to the use of curry in their diet.

Kitty Coons Says:

Thank you for this article.

I was concerned that your piece should have
misspelled “dependent.”

I have worried that I might be heading into
Alzheimer’s but my problem is probably just
stress based on the new school and a change
in my classes.

Sandra Says:

I understand what David is saying. I know there is something wrong with my thinking. People justlaugh and say “I know what you mean”. I don’t think they know what I mean. I have always loved words and been very articulate but lately I find myself forgetting what words I need to finish what I am saying. I forget people’s names that I know very well, for example my co Mother-in-law is someone I have known for years yet it took me 45 minutes to remember her name. I forget entire movies, books, conversations. Upon occasion when I wake up at night I forget where I am and where the bathroom is. I go to my front door where my old bathroom would have been and only know that I am in the wrong place when I unlock the door and open it.
I have been knocked unconscious four or five times all before the age of 7. I have also had concussions several times as an adult. I am manic depressive but I know my brain.

suzanne Says:

I cared for my Mom for six years until she passed. She never forgot who I was totally, but would accuss me of things I would never have done at times
It is a horrible disease and what is worse is when they have periods of lucidity and know how horrible it has become. At least my Mom did and out of the blue while babbling she suddenly apologized for me having to take care of her like an infant. I told her she’d have done the same for me. I have never forgotten that moment or the one where she passed from my life. She was my best friend and although I know I did all I could, the disease is so relentless it often leaves the caregiver wondering if they could have done more.

Joanne F. Silva Says:

My father had Alzheimer’s Disease at the age of 58. He died at the age of 64. My mother has “FTD”, which is another form of dementia. She developed this at the age of 69. She is now 77. It is very hard and very sad for the family to go through. We were robbed twice by dementia. People who’s parents live and are relatively well into later years are so lucky. I miss my dad. I now miss my mom, as she can’t talk and does not know what is going on around her. So unfair.

Mark Says:

My cousin didn’t remember my mother’s death and the fact she went to her funeral, which puzzled me. And when I reminded her of it, she showed pain on her face.
I didn’t see her for three years after that,w hich was stupid. But I wanted to remember as she was, not as she is. But now, my cousin — who once was very close to me and invited me over a lot of times for dinner and to talk — had to ask my name four times. I was so upset I ran into the bathroom and cried. Our one hour visit was cut in half because i had to leave, I couldn’t bear it. Alzheimer’s is a horrible disease.
I also had an uncle who I met in the last stages of Alzheimer’s and he talked in gibberish. My aunt told me to pretend to understand, but I’m not good at that. The man built his own house.

Rose Says:

My mom is giving into dementia, it breaks my heart . She had been admitted into a nursing home friday following a week in the hospital after a fall, she has been in a state of decline for some time now but it is as if she just gave up, she fought the hard fight and now she just lays there, all I want to do is cry, she lives on the opposite side of the country from me , when I had to leave on thursday after delaying my flight home twice she just cried and begged me not to go. I feel so frustrated , so depressed, I want to make it easier for her …

Eileen Says:

The sleep surprises me, most Alzheimers patients suffer from sleeplessness and restlessness. Is he getting too much medication?

Shannon Says:

Please make sure you or your loved one is not on a cholesterol lowering statin, like Lipitor, it can & will cause memory loss that can be mistaken as Alzheimer’s.

JayGee Says:

My husband has slow Alzheimer’s – diagnoses several years ago, symptoms several years prior. I moved fairly close to family, found a wonder of a caregiver, and we ride a slow, slow descent into the unknown. We have no social life, and have little family contact (we can’t go to college football games, do an 80 mile round trip to a barbeque and beerbust, or just pick up and go out to places where the food is distasteful to my husband – shame on us). (Whoops!, sorry about that.)

I do little or nothing of any consequence, other than superintend – the Deity considered it amusing to disable me about 20 years ago. Or perhaps the Devil did it. but whomver left me most of my brain, so I’m ok.

By staying in familiar surroundings, with things to do if he chooses, little doable (or forgettable) chores, food he likes, neat pets of modest size, and excursions with one of the two caregivers. He forgets enough to not know his kids don’t visit, nor his grandkids.

God’s been good.

Love, luck, and sincere sympathy to all you in this struggle.

JG

Jessie Says:

To all of you who are caring for a loved one with this horrible disease, God Bless you! My heart goes out to each and everyone of you…and while it won’t mean much coming from a stranger, thank you. It takes a lot of courage, strength, and love to put your life on hold and commit to seeing your loved one through one of the most horrible diseases we have now.
I too know it’s extremely hard. I moved my children back to my Grandmother’s to help take care of her. I gave my husband the “option” to move with us, or see his family on weekends. Not very fair, very one way, but I had no choice. This woman had raised me, loved me unconditionally, and always been my rock, if I had put her in a nursing home, I would never have been able to live with the guilt. Medications could change her attitude so drastically, I have fought with doctors and nurses who, because they had a degree, thought they knew better than me….I stood my ground! She had a wonderful neurologist that supported me, and would always back me. I cannot imagine what things would have been like without his support.
She did not sleep at night either, it didn’t matter how much you occupied her during the day, she would yell all night. My children and I slept on pallets near her bed so I could calm and reassure her throughout the night. They slept with me because her screaming would wake them and they would be scared otherwise. I mention these things not for anyone to pity what we went through, but to show that children are resiliant….they are proud and glad that they were able to be with Nanna, even if she didn’t “act right” at times. I believe it strengthened them…I’m sure many would argue with that, but I think it helped teach them how do deal.
I was truly blessed by God to be able to care for her, work full time, raise two beautiful children, and keep my marriage. Not everyone can do this, not everyone should do this. Each person deals differently, but remember, they cannot help how they are, or how they act or react. That is still your loved one….just changed by a terrible, horrible disease.

Robin Says:

Hello to all you Angels out there caring for loved ones with Alzheimers.
My mother came to live with me last August after my Step-Dad fell and broke both of his arms. My mother whom is 88 started showing signs of this in 2003. I was told this may happen by her Cardiologist as she had Open Heart surgery in August of 2000 and did not regain consciousness for nearly five days. After many testings, it was confirmed that she had Dementia/ Alzheimers She has been taking Aricept and Namenda for several years but they don’t seem to have made any difference in fact at times I wonder if they are making her worse. She gets so confused and very angry at little things. She also is taking an antidepressant Lexapro but it too does not seem to help her out bursts of anger and I was told it would help keep her calm. I just lost my Husband on May 29th due to Cancer and I am not sure which of these dieases is worse to be a care giver to. They are both very Heart breaking. I pray daily that they will find a cure for both someday very soon.

timmy Says:

we know that most old people seem to get the,”you stole my stuff, you are keeping me hostage and I want to go home”, from our older loved ones. I think it is difficult for most to seperate the nornal problems from the alasimers issues. We should try to understand the diease and seperate it from being “just old”!

Deb Says:

hello to all of you that are looking for answers or responded to the post of forgetting to close the tailgate on the SUV or the coffee in the microwave,Im hear to tell you it’s just normal forgetfulness.I my self have done this and Im only 39.Everyday I walk into the room to do or say something and forget what it was for.I find if I go back to where I had the thought such as Im in the bedroom and go to the bathroom to grab the basket to collect the dirty clothes around the house.I remember what I was doing.It is fustrating and I feel I waste alot of time retaking my steps.I hope this is helpful.It is gross when you go to make a cup of coffee and find that a day old coffee is sitting in the microwave.LOL

Jayden Valentino Says:

I’m a documentary filmmaker and an I-Report correspondent for CNN. My grandmother suffers from Alzheimers … I feel your pain and have witnessed the horrible effects of this illness. Please share your stories with me … I am currently compiling stories of Alzheimers patients … who they “were” – before Alzheimers took them away. They’re stories deserve to be told.

JvBooking@aol.com
- Jayden Valentino
http://www.imdb.com/name/nm1101678/

Connie Says:

I went to a neurologist with alzheimers symptoms. He checked
me and sent me to a sleep clinic. I have sleep apnea. It mimics alzheimers symptoms. I am 59 now. My mother died from
alzheimers, so it is always on my mind.

Therese Says:

To all, the best defense against Alzheimers is to get educated about the different types and symptome. I see a lot of the comments are mentioning other diseases that mimic Alzheimers. There are tests for Alzheimers to rule out this disease. I have ADHS and am on medication and I can identify with a lot of the symptoms of not only Alzheimers, but dememtia, also. There is a difference there, too. Just because you may have some dementia does not mean you are getting Alzheimers. The symptoms of MS mimic this disease, too. Please get the all the information you can and talk to health care professionals who have experience with Alzheimers and have had expeience working with residents and families. I believe we can think ourselves into this disease by not knowing what to look for and by hearing others’ comments about us ‘forgetting where we laid our keys.’ You alone can make a decision on your own health with information and trust in yourself about any symptoms you may have. Talk to others whom you can trust to give you a straight answer about your concerns. Dementia can be thwarted, also. You can change how you live your life and apply activities to enhance memory. My mom always forgot she put the cup of coffee in the microwave until she needed to use the microwave and found the cup. I do that also. It is a learned behavior. I saw her do it a million + times and I do it now. So what? I am a nurse of 15 years with extensive experience with those who have Alzheimer’s disease and I am 53. I was told by a doctor years ago, that if you remember you forgot then you are ok. It’s when you cannot remember you forgot that you should seek advice. Makes sense to me. Good luck to all and God Bless.

mary ann Says:

my father had alzheimer’s i took care of him 24 hrs a day every day till her passed at the age of 99 it got him in his 70’s he beat me almost every day when i was a child…… he didn’t know who i was when i cared for him………… but he would call me the nice lady that took ceare of him i bathed him dreesed him & fed him in the end ……i knew he cared fore me even if he didn’t know my name…… he liked me for myself not because i was his daughter.. but because he calld me the nice lady that took care of him
Mary Ann

mario Says:

My mother had the disease. It is a death sentence for sure. It is a great case for euthanasia in my opinion. We had to spend almost her entire life savings to treat her in a nuring home at $7,000 a month. I told my wife if I get the disease we are getting a divorce and I am just going off somewhere to die. I am not giving my life savings to doctors in nurisng homes so they can buy boats and airplanes with it. That is how I feel about it. Money is a sacred commocity and needs to be spent on the living. Once a person has that disease it is time to let them go, unless of course you are rich and can easily afford the nursing home care.

That is how I feel about it after watching my mother die from it after a 7 year illness.

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