http://mychannelnews.info/dementia/how-can-those-with-dementia-and-their-families-cope-with-day-to-day-frustration/ Latest Channel News Tue, 02 Feb 2010 23:04:10 +0000 http://wordpress.org/?v=2.9.2 hourly 1 http://mychannelnews.info/dementia/how-can-those-with-dementia-and-their-families-cope-with-day-to-day-frustration/comment-page-1/#comment-1618 Diana Arnold Fri, 27 Nov 2009 05:36:30 +0000 http://mychannelnews.info/?p=1437#comment-1618 I am in end stage renal disease, and have brain damage in the frontal lobe from ch. I am scared to deAronic pain. I get upset when I understand others, but am "trapped inside." My vocabulary amd memory are the first to go. I am scared of the posssibility of a nursing home, but medicare coverage will entitle me to Obama's "Choices" program, which entitles me to 14 minutes of housework by a home worker a day to keep me out of a nursing home.( Where I am a likely candidate for a resraint device.) Cant't something be done to help us stay home, with a realistic amount of help[ The apartment I live in just sent exterminator to all apartments, and and drawers and closets had to be emptied into plastic bags, which were to be piled on furniture that had to be pulled into the middle of the room. I just turned 50, and the last thing I want, after a lifetime of caring for others, as a nurse myself- is to leave the home I am familiar with to a home where my 22 and 12 year old (disabled) son will ,have difficulties comming to see mee me because of my environment. I am in end stage renal disease, and have brain damage in the frontal lobe from ch. I am scared to deAronic pain. I get upset when I understand others, but am “trapped inside.” My vocabulary amd memory are the first to go. I am scared of
the posssibility of a nursing home, but medicare coverage will entitle me to Obama’s “Choices” program, which entitles me to 14 minutes of housework by a home worker a day to keep me out of a nursing home.( Where I am a likely candidate for
a resraint device.) Cant’t something be done to help us stay
home, with a realistic amount of help[ The apartment I live in just sent exterminator to all apartments, and and drawers and closets had to be emptied into plastic bags, which were to be piled on furniture that had to be pulled into the middle of the room. I just turned 50, and the last thing I want, after a lifetime of caring for others, as a nurse myself- is to leave the home I am familiar with to a home where my 22 and 12 year old (disabled) son will ,have difficulties comming to see mee me because of my environment.

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