Comments on: Epilepsy A Serious Neurological Disorder – Is there any Hope for Recovery?

By: Thayer

Thayer — Wed, 04 Nov 2009 03:33:35 +0000

I have been seizure free for over 12 years, however my wife, still has seizures around the time of her period. perhaps they should do a study of women who have epilepsy and have seizures around thier period,like my wife does.

By: Debbie

Debbie — Sun, 25 Oct 2009 09:00:57 +0000

i was diognosed with epilepsy when I was 5 yrs old it eally had an effect on me as far my selfasteam I was always a fraid of having a seizure. My mo and many members of her family also suffered from epilepsy. For my mom it begain when she was around 14 but after having children starting at age 20 she became seizure free. I always thought for me to become free of seizures I needed to have a baby. well at age 29 I had a child during the entire pregnantcy I was seizure free But soon after the baby was born the seizures came back I was parilized.After about 3 months I went to a new nerolgist he diognosed me with a type of seizure “focal motor”. He put me on phenobab.110ml aday I have been seizure free for the first time in my life for over 20 yrs now. I can not believe how differant I am. The fear is gone. If you suffer from epileptic seizures. Dont give up hope Find a Dr. who can give you back your life. with the right medication. Bless You.

By: Curt

Curt — Wed, 26 Aug 2009 20:25:33 +0000

This is to S.T.Larson

***S.T. Larson Says: I started having Grand Mal siezures, different medications were tried and over the years and different Drs. I am now on Depakote and Dilantin. I am still not free of them**

I had the same issues and stopped taking Dilantin and now I’m on a combo of Depakote and Keppra. I’ve been seizure free for 5 years! Ask your Doctor about the switch.

By: DENYCE

DENYCE — Tue, 18 Aug 2009 06:47:40 +0000

I had my first grand mal when I was 17. Petite Mal and Jacksonians came soon after. I do not remember the years 68-72 because of them. Even though I have been grand mal seizure free since 1980 )(and only because I was getting off my pheno—do not mess with something that works),I still have small seizures when laying down. Something no one wrote about–if you have low enough blood sugar (like a 40 or less),NOT ONLY WILL YOU HAVE A GRAND MAL–BUT YOU CAN GO INTO A COMA AND NOT COME OUT. My neurologist told me to eat high protein,high carb diet as the term “hypoglycemic” had not been coined yet. You cannot starve yourself—food and pheno have kept me seizure free for over 45 years (with the exception of the one in 1980). Get a good doc and stay away from strobe lights too—you will have a seizure

By: Addie

Addie — Thu, 13 Aug 2009 03:04:04 +0000

Hi -

I’ve had idiopathic grand mal seizures since I was 14 (I’m now 55). I have managed to live pretty much a normal life – I drive, work, graduated HS and college. Epilepsy is not “the end”. I’ve been on Dilantin/Phenobarb – never controlled the seizures; been on Tegratol – didn’t control them either; went on Depakote (the FAT pill from h*ll – gained an enormous amount of weight), but it controlled the seizures. Due to the weight problem, my neuro switched me to Mysoline, which curtailed my appetite and controled my seizures. I have been seizure-free since 1989.

Epilepsy is not that “crazy” medical condition that no one wants to talk about today. I’ve never been ashamed and refused to let the disease control my life.

MY ADVICE: Find a great neurologist. I was 35 before I finally found a neurologist that could tell me exactly what kind of epilepsy I had, and that I wouldn’t even have “partial” seizures anymore – no other neurologist would even try. They treated it the “best they could” and if I had a seizure, they just increased the medication, without finding out “why” I had a seizure.

Also . . . sleep depreviation (less than 7-8 hours a night) can trigger seizures, as well as stress that a person keeps bottled up. If you stressed out – let it out! Good luck to everyone

By: Lewis Jenkins

Lewis Jenkins — Thu, 13 Aug 2009 01:44:07 +0000

My brother Timmy died of grand mall epilepsy back in 1974, but there is a cure for it. I wish I had known this he would still be alive today. Most epilepsy is caused by a badly stopped up bowel system, just cleaning out the bowell helps cure epilepsy, of course eating a well nourished meal also helps. My brother had epilepsy, but I have a similar but different problem, I have severe cataplexy, which is no fun.

Lewis Jenkins

By: S.T.Larson

S.T.Larson — Thu, 13 Aug 2009 01:17:36 +0000

I was in an accident 21 yrs ago, I landed on the pavement head first. A few years after tha I started having Grand Mal siezures, different medications were tried and over the years and different Drs. I am now on Depakote and Dilantin. I am still not free of them, last month I had one. Alone luckily, I cleaned up the mess, tables and chairs turned over and went home. I sometime smell things that aren’t normal. I need to work to support my family, one of us is going to win and that’s me

By: Elizabeth Miclette

Elizabeth Miclette — Wed, 12 Aug 2009 23:28:48 +0000

As a person very familiar with seizure disorders and Epilepsy, the term “fits” need to be removed from this serious medical condition. “Fit” imposes a label on those with the disorder or disease in which it would seem one has control. They do not. Seizure activity is not something a person can control. It is difficult enough for those to not have a stigma attachment for something that is very misunderstood. The truth is, unless injury occurs during the seizure, it is painless and rarely if not at all remembered by the person who suffers it.

It isn’t a “fit”. A “fit” is something a spoiled child has when they want something. And trust me, this isn’t something a person wants.

By: Wendy Guild

Wendy Guild — Wed, 12 Aug 2009 23:12:24 +0000

I am a person who has had Epilepsy all my life. I had to have the brain surgeory and luckily it worked for me successfully. Although last year my husband and I were hit by a semi and I thought they were coming back so I had to have an EEG done again and the doctor luckily said he couldn’t see anything that would show that the seizures are coming back. I feel very lucky that the surgeory worked for me because I am so happy to beable to drive myself where and when I want to go someplace and it has helped me do alot better in school.

By: jon

jon — Wed, 12 Aug 2009 19:56:26 +0000

i am sorry you tell you that one time i had a siesurew disorder that was bad. but in 1993 i had brain surgery and it sure as hell helped.
so as far as people seem it’s a fear . that the people that don’t understand it nor think it a disease. sure it cronic , soooooooo.