Comments on: Why Fibromyalgia Patient’s Life Is More Difficult?

By: dave

dave — Tue, 17 Nov 2009 20:30:19 +0000

This website below will simply answer your Fibromyalgia questions with inexpensive healthy solutions.
Also stay away from sugars, color food dyes (especially caramel coloring), aspartame, MSG, and simple carbohydrates. Epson salt baths are also wonderful for body aches and pain.
You will notice that Epson salt key ingredient is magnesium.
http://www.healingwithnutrition.com/fdisease/fibromyalgia/magnesiumstudy.html

By: Marie L

Marie L — Sun, 08 Nov 2009 11:09:22 +0000

I’ve been reading the newer posts and I am so very sad to see so many people suffering how I have been. For me it’s been 10 years. Sue — Thx for leaving your email addy, I’ll be emailing you. It’s always nice to have someone in the same situation to be there for you to listen, try to help, mainly to be a friend who you know won’t “brush you off” as some kind of a hypocondriac! (or however ya spell it..means a faker if anyone doesn’t know that word) Ronnie – I hope you come back to check the postings..Please email me.. I have gone through some similar things as you and I think I can help you.. Anyone here needing a “Fibro friend” I guess it could be called, feel free to email me. My heart breaks for you all and my prayers are with you. One the other hand, it is a relief to know how NOT alone I am. I even made a new email box so I don’t lose emails from Fibro friends in the mess of my main mailbox.
Feel free to email me at:
MemesFibroFriends@gmail.com (Meme is my nickname..my real name wasn’t available – more people with Fibro I guess!)

By: ronnie

ronnie — Wed, 04 Nov 2009 18:40:17 +0000

I feel better just listening to people who are in the same boat. I am 52. I had a wreck about 5 years ago and my life changed. I am fatigued and constantly battling for sleep. Iam on sleeping medicine, Nuerotin, Cymbalta, Percocet 10 mg. Lunesta. I feel like dying, my doctor knows I hurt but he don’t no how much. My feet hurt me so bad I cannot wear shoe’s. My neck, back, shoulders and head stay in continuous pain. I am so fatigued its hard to get out of bed, people think I have got lazy. I was a coach, foreman, now I had to quit my job after 27 years and file for DISABILITY. Iam a mess god help me. I am not lazy, I am not facking, my wife and I haven’t had sex for 2 years, I keep getting denied my social security. I am at the end of my rope. I would give anything to live a normal life. God bless and help you all. I will pray for you and you pray for me. People have no idea what were going thru.

By: GRACE

GRACE — Tue, 03 Nov 2009 21:03:40 +0000

WHAT TESTS ARE USED BY A DOCTOR TO DETERMINE YOU HAVE FIBRO?

By: Henriette

Henriette — Sun, 01 Nov 2009 23:19:49 +0000

I’ve had Fibro for 15 years. Was treated for Chronic Fatigue (which are the same symptoms, and one of the same)My symptoms were getting worse with every stressful situation I encountered.Pain, Pain and more Pain. I have been seeing a wonderful Dr. in the LA area, who has devoted the last 45 years of his life in finding the reason, treatment and long term remission of this horrible disease (there is no cure). His book is WHAT YOUR DR. MAY NOT TELL YOU ABOUT FIBROMYALGIA, WRITTEN BY DR. PAUL ST AMAND AND CLAUDIA CRAIG MAREK. GOOD LUCK

By: SUE

SUE — Fri, 30 Oct 2009 01:16:35 +0000

I’VE HAD FIBRO FOR OVER 30 YEARS NOW,EXTREME SEVERE PAIN, I RECENTY WAS GIVEN A PAIN PATCH,”FENTANYL” 50 MG..AND PILLS ROXIXCOTIN 30 6 TIMES A DAY WITH LYRICA AND ITS HELPED ABOUT 40% IVE TRIED EVERYTHING. AND ALSO NOW HAVE 4 TYPES OF ARTHRITIS AND NEUROPATHY.UPPER & LOWER EXTREMITIES..FINALLY GOT SSD, AFTER FIGHTING FOR YEARS & A LAWYER, I’M 55 AND A WIDOW. AND LIVE ALONE..STRUGGLE DAILY.
THE PATCH IS PROBABLY THE BEST HELPFUL PAIN THING I HAVE HAD.AND I USE A JACUZZZI 105 DEGREE’S DAILY 3 X DAY OR MORE..FOR SOME RELIEF.& NEVER SLEEP…I WAS IN SEVERAL ACCIDENTS, AND ALSO LIVED A VERY EXTREMELY STRESSFUL LIFE..WHEN MY HUSBAND WAS ALIVE , HE WAS DISABLED SINCE I WAS 24 YRS OLD WITH WAR PTSD. SO IT TOOK ITS TOLL..I AM EXTREMELY ALLERGIC TO MOST MEDS AND TRIED EVERYTHING AVAILABLE…TO NO AVAIL..
SO WHAT I’M DOING NOW IS BETTER THEN ANYTHING OVER THE YEARS.
I AM CONFINED TO MY HOME, 99% OF THE TIME..WALKING, REALLY DOES ME IN PAIN WISE..OR ANY TYPE OF EXERSISE..ITS LIKE THE OPPOSITE OF WHAT THEY SAY..ALSO COLD..BOTHERS ME..HOT WEATHER IS BEST ,,IF I HAVE 3 DAYS A MONTH “GOOD” I AM LUCKY.
I AM ALSO ALLERGIC TO B12 SHOTS, AND VITAMINS , ITS VERY WEIRD…THEY MAKE ME ALMOST COMATOSE..FOR DAYS…STRANGE.
IF ANYONE WANTS TO TALK..YOU CAN EMAIL ME..THANKS,SUE

KISSEMEDOTCOM@AOL.COM

By: Marre Carpenter

Marre Carpenter — Fri, 30 Oct 2009 00:27:04 +0000

P.S. Does anyone also have dyslexia of words AND numbers with theirs. This is neuro lyme….3rd stage, then you know its untreated lyme for sure or its co-infections……

By: Marre Carpenter

Marre Carpenter — Fri, 30 Oct 2009 00:06:17 +0000

I have Lyme disease and with it comes the pinpoint areas of Fibro. I am in constant pain, especially in hips, legs, (big toes for some reason)and arms tire unusually easy. Its been 20 yrs since my lyme diagnosis and many more bites, yet that epidural connection has me wondering also. I did have a fibroid tumor/cyst removed from left of spine (almost on it)which left scar tissue everywhere, a pinched nerve they found that has never been fixed, and a whole lot of falls from my legs/knees giving way from under me. They gave me disability for somataform disorder/syncope, but judge wrote a little excerpt in last paragraph that she wasnt going by what the state docs tried to pull, (I had too much evidence in my behalf), and now I took pics and had them remove the darned tick off my hip WITH the darn bullseye around it this time at their darn clinic in April! Fixed their butts, all in my head fools! I really believe there are many things that cause this Fibro, and I hope others find their own reasons and cure soon. God Bless you All!

By: Marie L

Marie L — Wed, 28 Oct 2009 03:27:00 +0000

Sam Stevens — I have the total opposite problem. Once I get to sleep, I am sleeping SO deeply that my daughter will let my 18 month old grandson climb all over me to wake me and once I do wake up, I never knew he was on me. My children say that they shake me, shove me, scream and yell, and IF I budge, it’s to tell them to hush and I am out again. Now that could be one of my medications, but it sort of scares me that a 20+ pound child can actually sit on my head – NO LIE! – and I do not budge. Where did you find that info? That’s one that I haven’t seen on the Internet or anywhere yet. Thanks so much for the info though!

By: Marie L

Marie L — Wed, 28 Oct 2009 03:21:47 +0000

I am in tears reading these posts. I see myself in all of your posts, and my heart is breaking reading them. They are all so ‘me’ as well. The one that is closest at this point for me is Jan’s where she wrote how Fibromyalgia “makes you feel so utterly useless”. That’s exactly how I feel, plus frustrated because the pain is so high tonight. The ‘pity parties’ come for us all I guess, and we feel we must fight them. We live in a 3 bedroom condo-type apartment and there are 6 of us here: my husband and I, 3 of our children: ages 11b, 16g, & 19g/teen mother, and her son: our 18 mo old grandson.(Grammie’s love!!) My girls want to be teenagers (I’m raising my grandson while my daughter “runs” with friends, sleeps in, etc.) and go out with friends, yak on the phone, and the usual “I don’t wanna do chores”. Problem is in my house, chores mean ALL of the housework as the constant NEVER ending severe pain keeps me trapped in this chair. My daughters are old enough to understand, yet they do very, very little. My husband cooks and does dishes after driving a semi all day. The girls occasionally pick up around here and my 11 yr. old son has chores – but NONE will do enough to keep me from wanting to crawl under my computer desk when anyone comes to our home. I can’t afford a maid service, I looked into it. I am on SS Disability, my husband works, but my meds are expensive even with our Insurance. I need dental work and eyeglasses but I can’t get myself out of the house. The pain is unreal and really BAD even trying to walk across the room. Some days I can’t get upstairs at all so days go by without showering. Fibromyalgia, to me, in 3 words – robber of life. All of you are surely in my prayers.